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The Silent Health Crisis Among Autistic Individuals

322K views · Dec 6, 2024 · People & Blogs

Comments · 3.6K

  • @Auticate · 1 year ago (edited) · pinned

    What are your struggles with medical issues and/or doctors&apos; visits? Share your thoughts below ⤵ and also anything that has worked for you so we can all learn and improve our experiences together!<br><br>And grab your free download here: <a href="https://chrisanddebby.mykajabi.com/pl/2148601808">https://chrisanddebby.mykajabi.com/pl/2148601808</a>

    190

  • @Gilly-u2c · 1 year ago

    YES! Constant fight/flight... its exhausting. You only notice what &apos;normal&apos; feels like when you&apos;re completely alone.

    520

  • @PatchworkDragon · 1 year ago

    My personal pet peeve is when doctors act like you&apos;re wasting their time. &nbsp;If I wait for months to see someone and spend hundreds of dollars to talk to them... the issue is CLEARLY important! &nbsp;I don&apos;t know anyone that makes things up just for the joy of the appointment. &nbsp;(And if they do, that itself is a medocal condition.)

    1.6K

  • @belleamie363 · 1 month ago (edited)

    Crohn&apos;s, Sjogren&apos;s, hEDS, POTS, MCAS, sleep apnea, TMJD, mild Rynauds, ADHD, lots of &nbsp;allergies, deviated septum and other sinus abnormalities I had surgery for, a tiny bit of endometriosis, infertility, small spot of squamous cell carcinoma that was removed, OMG, the list just keeps growing! What now??? I&apos;m being evaluated for autism next week. And that&apos;s why I am here to learn. Oh and I forgot to mention the major depression and generalized anxiety.

    30

  • @SaraGawani · 1 year ago

    I see a Nurse Practitioner as my primary provider who specializes with patients on the spectrum and other unique issues. &nbsp;She listens and is great. &nbsp;But she does have to refer me to specialists with a lot of my symptoms, like severe stomach pain. &nbsp;The specialists told me I was healthy and to stop wasting their valuable time because &quot;actual sick people&quot; needed them. &nbsp;Three months later my brother found me unconscious on the floor and called the ambulance. &nbsp;I almost died due to the specialists missing that my complaints were real and I had severe damage of my small intestine due to celiac disease. &nbsp;My Nurse Practitioner now makes a point to not just refer me, but to call the specialist and explain to them that she knows me, and if I say something is wrong, they need to listen. &nbsp;It&apos;s not a perfect system, but finding a primary care provider who likes you and is willing to take time to advocate for you is a literal life saver.

    412

  • @nayaleezy · 1 year ago

    The medical industry repeatedly feels like abuse, the industry uses archaic scheduling &amp; intake processes, insurance complicates transactions, and you get better service at Walmart.

    342

  • @25meip · 11 months ago (edited)

    I remember when I went in for my MRI, I hadn&apos;t thought ahead to the fact that when the machine turns on, the music in the headphones they give you cut out abruptly. The technicians yelled at me for &quot;moving around too much&quot; because of how hard I was shaking and had to rerun the scan. When I got out, everything was a blur, I was exhausted, nonverbal and could barely stand up

    48

  • @fightinamrah · 1 year ago

    My dad was always told to be a hypochondriac until he got diagnosed as an autistic person at the age of 70! His last 12 years were his best ones, he used to say.

    358

  • @Elodie_82 · 1 year ago

    Having to call to make the appointment when you absolutely HATE the phone.

    2.3K

  • @ChanJENI · 3 months ago

    I have been very luck with doctors this past year. I&apos;ve had an MRI, a CT scan, an abdominal ultrasound, tests for vertigo, for ulcers, for h.pylori, for liver disease, for heart disease, and for vitamin imbalances. Everything has come back negative, but every doctor I&apos;ve seen -- from the local ER doctors, to the ER doctors in another province when I ended up in the ER there, to my family doctor, to my eye doctor, have all told me that my experience is real, and whatever the issue is, at least I&apos;ve managed to rule out the big ones, and to just keep coming in with symptoms as I develop them. <br><br>My family doctor put me on an SSRI, and that solved my 3 biggest issues within a month.

    6

  • @Gilly-u2c · 1 year ago

    Can we please show this video to almost ALL doctors!? It needs to be heard.

    106

  • @j.b.4340 · 1 year ago

    Autism rarely occurs alone. It usually comes with friends (comorbidities)

    685

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