If you have dysautonomia, you need to know what hypocapnia is

Comments · 17

• MA

  @marianapalacios1675 · 4 days ago

  Ive had several crises in this past year- once i called 911 i thought i was having a cardiac event in the middle of the night but everything was fine! The only metric that was off was that the co2 in my blood was low. But glucose was fine, Ecg was fine, temperature was fine. It started with a cramped leg

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• BE

  @beverlyquigley6608 · 4 days ago

  That’s me! Hyper Adrenergic

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• SP

  @SpeedBoosted911 · 4 days ago

  Your videos of debugging (diagnosing) the system by observing of small micro systems and it&apos;s elements - is very helpful and the correct way to understand and find the root cause of all this compensatory circus that is done by other systems as a response to root cause.<br><br>I&apos;ve lost my tracks: main main symptom - first of all my SpO2 is always at 91-93 range at rest(it goes to 99 if i do 2 deep breaths).<br>Second -immediately after waking up - i can feel fine but within 5 minutes of standing it changes to total exhaustion, fainting, and many others symptoms.. the HR can be steady on some days or +10 on others, the BP gors down when standing up(once i caught 85/67 (but sometimes it&apos;s at normal 120/80 and i am still dying). After 10-20 minutes of being awake and not lying down - already totally exhausted and can&apos;t sit/stand, a desire of falling down from extreme fatigue liek as if you just finished 2 job shifts. I JUST CAN&apos;T FIND WHERE TO DIG TO..<br>I know you&apos;re lab is amazing and does comprehensive research, but i am here in Israel 5 years fighting to get my life back..or to give up on it and end it.<br>Doctors and my GPT constant research always leads to paths but i lost the track on what can be a root cause. I got MCAS for sure, ME/CFS too.<br>Sometimes i wake up and feel normal(super rare days) all of a sudden and i am functional, but on bad days i am a dying zombie with zero desires(cuz of 10/10 extreme fatigue and migraine) that can&apos;t even stand up and cook because of Flght or Flight mode activated, nor adrenaline tremor, extreme craving for carbs and sweets, zero brakes on carb consumption, the body screams for help!<br>P.S. my stomach abdomen area grew like fee liters in past years, i never had it and it feels like fluids or something odd and there is an inner pressure when the falre exist(stomach looks like of a pregnancy 8th month despite i am athletic build), most of the days i feel mechanical resistance to take deep breaths above 25-30% because of that odd abdomen inner volume displaced by something.

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• KE

  @KevinOutwitME · 4 days ago

  My case seems to be CCI/AAI with IJV compression; my CO2 levels are normal at baseline but have plummeted every time I&apos;ve been brought to an ER(or sat upright.) It and my HR seem to take about a week to bounce back.<br>Symptoms esclate beyond beyond tingling to a strong burning nerve-pain, seizures, and temporary paralysis. I can provoke the tingling/pain doing deep breathing so I&apos;ve given up doing that to try and relax.<br>Beta Blockers and other med targetting the HR made full hypocapnic episodes easier to provoke.<br><br>Unfortunately most doctors(in the US?) don&apos;t know what to do with low-CO2 so they shrug off the bloodwork same as anything else related to EDS/ME/POTS.

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• SA

  @santilopezlazo8480 · 5 days ago

  I was diagnosed with Hyper POTS, 960 of noradrenaline, 1900 of Systemic Vascular Resistance, with low cardiac output and low toracic fluids

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• SP

  @SpeedBoosted911 · 4 days ago

  Btw: car computers aka ECU work in kinda similar way, where most systems work in a closed-loop mechanism, where they try to achieve an equilibrium by using a base maps with values and a lot of compensation maps. Everything brought and scanned from sensors, the outputs and the triggers...IF THEN.<br>So actually if we look at those systems they are sooo similar but the problem is that car parts can be checked by simply connecting, while human body is a total black box where we can only measure the results(outputs), to manipulate triggers and again check the outputs and GUESS which system causes the compensations or overcompensations of other systems.<br>The funny and ugly part of it that even an abdomen bend(or neck bend), yes..the physical bend, can cause so much disruption. Everything is too fragile, too sensitive, too complex...and easily destabilizes the system.<br>Once again I&apos;ll say it - the problem that we can&apos;t have enough measurements to find many complex (not obvious) cases and meanwhile - the body can&apos;t sit at the mechanic shop, but must operate and suffer through this

• AN

  @annjames1837 · 4 days ago

  Can a Vo2 max test determine if someone has hypocapnia?

• CA

  @catgrant7064 · 3 days ago

  Have you noticed patients with both dysautonomia and erythromelalgia by chance? &nbsp;When I did my active stand test, the blood was pooled down to my legs and I was having an erythromelalgia flare at the same time.

• MA

  @maristiko8858 · 5 days ago

  Can hypocapnea be the reason to feel much worse after doing breathing excercises where the breath out is longer than in?

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• AS

  @astonhollins · 4 days ago

  Thanks for this info. I am diagnosed w POTS and have low blood CO2, exercise is impossible at the moment. Every doctor I’ve seen btw says “low co2 doesn’t matter” so thank you for not saying that. After watching, I understand better why the CO2 is low. But is there anything I can do to help stabilize it? A breathing technique? Should I spend more time in the transitions, taking time to just sit up for awhile before standing? Slower transitions? I don’t understand what I should do to improve CO2 level. I’d really like to be able to exercise again. Seems like I need to find a PT to help with that. Any advice you can share is much appreciated.

• JC

  @JC-yz1sf · 5 days ago

  How can we find out if we have this?

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