Neuropsychiatric Manifestations of Lyme Disease

Comments · 73

• BJ

  @BJ-bc7sl · 3 years ago (edited)

  I’ve found that Pediatricians are not interested in Lyme. They make the parent feel like their crazy to assume Lyme. My child s western blot only had three positive bands but I recognized the Neuro symptoms from when he had a Lyme rash 8 years earlier and he suffered for years with those symptoms. When he started acting and complaining the same as he did 8 years earlier I knew it was Lyme. His symptoms were headaches, fatigue, cognitive / thinking issues, and social anxiety that came our of nowhere. My pediatrician gave him three weeks on Doxy and it didn’t help. I sought out a Lyme literate doctor and one month on multiple Antibiotics and lots of vitamin supplements my child was better! He almost got kicked out of school because he had no energy to participate and was sleeping during class. Such a shame that so many people have to suffer when there are options. If only the IDSA would open their eyes and listen to the people.  I wish he had treatment 8 years earlier we could have saved so much time, energy, and money to help prevent his learning challenges during those years.  Some of the earlier symptoms improved with lots of time but the learning challenges still plague him since he lost basic skills during the early years of his education from Lyme brain.

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• TI

  @Tinyteacher1111 · 3 years ago (edited)

  So true! If it’s latent and your immune system is weak, it re-emerges.<br>My son and I have all of these!

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• JE

  @jewelsking4756 · 2 years ago

  Let&apos;s face it, unless it&apos;s going to make a company or healthcare rich treating it, it&apos;s not going to be a diagnosis.

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• DE

  @debraderr6359 · 3 years ago

  As a retired psychiatric nurse I truly appreciate 🙏 this educational presentation. &nbsp;I hope that current nurses are following these educational offerings as they are the Frontline staff that would be able to make note of the changes in mood/behavior that could help both the physician and patient with treatment modalities.

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• PE

  @PegsFlamingoville · 3 years ago

  Most certainly need more doctors treating and testing for Lymes!<br>My son in law’s more accurate test was very expensive and he hasn’t been able to work for over a year. He just can’t stay focused on much anything, especially with a bit of pressure on his mental faculties. <br>I’ve found the lesser our expectations of him the more he can enjoy life. <br>Difficult at best for my daughter though.

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• AN

  @annetteormond3477 · 1 month ago

  I think the sudden deterioration of my 28 year old son&apos;s mental and physical health since 2017 at the age 17 has been caused by a tick bite that happened on a summer camp. <br><br>Thank you for this incredible video. I am only educated to middle school standard but still could understand a lot of the discussion. You give me some hope. <br><br>I live in the UK and I am only recently discovering the implications of Lyme Disease. I want to have this tested in my son to either confirm or rule out a diagnoses.

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• RC

  @rcridefast7395 · 5 months ago

  Unfortunately we people that have chronic lyme have no answers because insurance doesn&apos;t cover anything and you have to be wealthy to get treatment so we&apos;re trapped with our disease and have to learn to live with it

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• GE

  @GeorgeQH · 3 years ago

  Gosh, what a fantastic video - thank you!

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• LA

  @lauriecosgrove9662 · 3 years ago

  Big hello to Dr. Bransfield who I saw quite a few times in my early Lyme days. He was so helpful to me during that time with his treatment and suggestions. One of the best doctors I saw back in 2015-2016. Thank you for all you have done and continue to do and take care! 👏👏👏

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• ST

  @Staceylamar · 2 years ago

  Thank you to these gentlemen for taking the time to put this educational info out there for persons like myself, a mom with a child with PANS and positive Lyme test to whom is presenting with worsening mental symptoms. &nbsp;I&apos;m trying so despirately to gain information and find a knowlegeable physician.

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• TE

  @TeresaSvedman · 3 years ago

  Newly diagnosed in Dec 2022, thank you for an excellent discussion. I can&apos;t tell you how helpful these videos are for patients. I really appreciate your experiences.

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• JP

  @JP-xs5lo · 3 years ago

  No one could possibly understand it’s so bad on so many different levels. I hope we find a good test and treatments as soon as possible it’s like twilight zone scary having something public drs don’t even recognize let alone I mean that’s step one and we haven’t changed that.

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