SARCOIDOSIS..MY STORY

Comments · 85

• RO

  @roymeghs9066 · 11 months ago

  Thank you so much for sharing your story. I started with pulmonary sarcoidosis also affected my skin now my eyes are blurry n painful n itchy. Barely have eyelashes. Lost  my left kidney due to recurring stones n still wasn’t diagnosed yet then a chest xray for something else revealed enlarged lymph nodes when biopsied resulting in sarcoidosis. Now 2025 mri of heart revealed cardiac sarcoidosis. Please pray for me .thanks n blessings to all of you❤

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• CE

  @CedricWare-en5wg · 3 years ago

  I was diagnosed with it april 12th 2023 its a new battle for me all I can say is thank God it's not cancer and my sarcoidosis family we gona get thru it we jus gota take care of ourselves

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• RE

  @red19700 · 4 years ago

  Hi it&apos;s so Nice to meet another person who have this horrible Diease. I have Pulmonary Sarcoidosis and my journey has been difficult on different levels. The experience and the Oxygen Providers. My love and Faith has got me through the Challenges of the Diease. We will Win and Live a long normal life<br>Take care of yourself, 🌹

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• MO

  @Mombie_Amy · 5 years ago

  Thank you for making this video. My story is almost identical to yours. It took 2 years to get my diagnosis &amp; I just had my first failed steroid treatment attempt. I’m starting a new immunosuppressant soon &amp; I’m scared. I feel like the disease is progressing faster than my doctors can help. Your story gives me hope that this too shall pass. Thank you. ❤️

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• MO

  @MohammadAldubyani-xn9ri · 1 year ago

  You &nbsp;will be better &nbsp;, insh Allah .<br>I am Muslim and &nbsp;medical student <br>Thanks you &nbsp;for sharing us your history of illness I benefited from them <br><br>Thanks again

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• RI

  @RitaBowens-t6z · 6 months ago

  💜 THANK YOU FOR SHARING AND SPEAKING OUT ABOUT SARCOIDOSIS. I TOO HAVE THE ILLNESS. IT&apos;S A DIFFICULT DISEASE TO DIAGNOSE. I WAS SENT TO OSU HOSPITAL FROM ANOTHER HOSPITAL BECAUSE THE DOCTORS COULDN&apos;T FIGURE OUT &nbsp;THE ILLNESS. OSU IS A RESEARCH HOSPITAL AND THEY DID A LOT OF TESTING AND EVENTUALLY I WAS DIAGNOSED WITH SARCOIDOSIS. IT&apos;S IN MY HEART,.LIVER, KIDNEYS,EYES AND SKIN. I&apos;VE HAD SOME SERIOUS DIFFICULTIES BUT AFTER 10 YRS I&apos;M STILL ALIVE!! IN THE BEGINNING MY PROGNOSIS WASN&apos;T GOOD. BUT OSU HAS AND IS PROVIDING ME WITH EXCELLENT TREATMENT AND CARE. I&apos;M THANKFUL FOR THAT.... BECAUSE I WOULD NOT BE HERE. GOD&apos;S BLESSINGS TO YOU 🙏🏽❤🙏🏽 AND MAY GOD&apos;S HEALING VIRTUE BE WITH YOU!!!💜🙏🏽💜🙏🏽💜

• JU

  @juliestraw7064 · 5 years ago (edited)

  Oh my goodness I&apos;m in tears right now because your story is so similar to mine. I want to reach through the video and give you the biggest but gentle hug right now 🥺😭 I was misdiagnosed in 2005 then finally after two biopsies diagnosed with Sarcoidosis in 2007. I would love talk further sometime but wow. I think that there are probably more people who go through this and have no idea what&apos;s wrong. I have Pulmonary Sarcoidosis but it also has affected my skin in the form of Erythema Nodosum. For the first 10 years of my diagnosis the Rheumatologist that I was seeing at that time had me &nbsp;on Prednisone. No one is supposed to be on it that long. But to make a long story short and I know you and anyone reading this that has been diagnosed knows it&apos;s a fight. But certainly a fight worth battling not only for our own well-being but for our loved ones. I&apos;m saying a special prayer for you 🙏 😔 I will soon be uploading some videos because I am on a weightloss journey but I will also talk about my battle with Sarcoidosis. Take care dear lady. I have already hit like and I will subscribe as well. 💜 Also, why do otc eye drops only come in such small bottles, just sayin 🤷‍♀️

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• PH

  @PheeOB · 4 years ago

  This disease is horrible. I suffer daily!!! I hope u feel better

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• EL

  @elijahjefferson2479 · 1 month ago

  I was just diagnosed with Sarcoidosis in my Lungs.

• LI

  @LilacGlo · 6 years ago (edited)

  Hey sis! First of all you’re so beautiful! So great to see your face ! I’m so sorry you had to go through all this! Clinicians need to pay attention to what someone living it is really feeling instead of just waving them away! That’s why sometimes they do miss vital signs! Thanks for sharing your story! Aww bless you sis! God is faithful. Sending much love and hugs ❤️❤️

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• JE

  @jessicaramirez569 · 3 years ago

  I had had cervical cancer back in 2021. Went for my 6 month pet scan she told me I was incurable. That they would give me chemo to prolong life. 3 days later they called me with my biopsy results thy it was sarcoidosis

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• CO

  @CookafoodJA · 6 years ago

  Hugs to you sis. I feel so down hearing this. Don’t know why many doctors don’t listen when you say there is some going on with your own body. Been having bad pain on my left side of my back to my front rib for long time now, everytime I complain they try to tell me the pain is in my head😔.

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